Step One

Evaluation and Workup

If the child exhibits the symptoms found in NIDS, then a further workup is indicated. The lab work is extensive and can be expensive but is usually covered legitimately by an insurance company. The lab work can be broken up into three categories: general health, underlying illness, and immune/viral markers. The first group of tests is taken to assess the overall health of a child and to see what effects, if any, this disease has already had upon him. The second and third group of tests will show what underlying infections a child has and will give a snapshot of how a child’s immune system is functioning

If indicated, a NeuroSPECT scan may be recommended. Depending on test results, consultations with sub-specialists, such as a pediatric neurologist or endocrinologist, may be required. Some kids show thyroid or growth issues, reflecting classic autoimmune and endocrine issues.

Current testing is primitive compared to research protocols that could be developed and used to define the complexities of the underlying immune and viral processes; however, general markers currently are available that help point to problems and define targets for therapies.